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ENGAGE
Learn about our community and initiatives
Join us in upcoming campaigns, virtual activations, and community-driven events as we unite to raise awareness and fundraise for rare disease research
Click on the images to learn more about each UBA5 family
WHAT'S HAPPENING
Check back for new updates
2024 GivingTuesday
Dec 3
Activating our annual GivingTuesday Campaign
Twitch Together For Good
Dec 3-15
Twitch fundraising streams with creators supporting RSF
Run4Raiden 5K
Feb 2025
Celebrating Raiden's birthday and Rare Disease Week
RECENT PAST EVENTS
Click on images to view videos
GET INVOLVED
Coming soon...
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Ambassador Program
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DIY Fundraisers
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Event Volunteers
MEDIA
Featured In
Read about our journey and impact in the media as we share the narrative of hope, possibilities, and awareness
Other notable articles:
Koin 6; Nov. 7, 2023
OHSU News; Sept 13, 2023
KXL Radio; Sept. 14, 2023
The E: Series; July 11, 2023
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